In a world where uniqueness is often unseen, the #OILife GROUP shines as a beacon of community and support for Osteogenesis Imperfecta (O.I.) warriors. This isn’t just any support group; it’s a vibrant, engaging online space that transcends traditional medical discussions, shining light on the lifestyle and sometimes edgier topics that those with O.I. encounter.
Let’s explore how #OILife stands out in the realm of support groups.
What is Osteogenesis Imperfecta?
Osteogenesis Imperfecta, commonly known as O.I. or brittle bone disease, is a genetic disorder characterized by bones that break easily, often with little or no apparent cause. It can range from mild to severe, impacting not just the physical health but also the emotional and social well-being of individuals. Understanding O.I. is the first step in recognizing the crucial role of specialized support groups in the lives of those affected.
Introducing #OILife GROUP
#OILife GROUP emerged from the need for a unique kind of support – one that goes beyond the medical aspects of O.I. and dives into the daily realities and challenges.
Monthly virtual meetings via Zoom offer a safe, fun, and engaging platform for people of all ages with O.I. to connect, share experiences, and discuss topics that are often left untouched in other forums. This approach makes #OILife a pioneering group in the O.I. community.
Why #OILife GROUP is Different
Unlike traditional support groups focused solely on medical advice, #OILife brings a refreshing change. Our meetings are known for their lively, open discussions on various topics – from career challenges and mental well-being to fitness, nutrition, and wellness and other lifestyle choices.
The diversity of topics ensures that every meeting is not just informative but also a delightful experience, fostering a sense of belonging and understanding among members.
Extending Connection of OIers Around the World
#OILife GROUP has been a space for O.I.ers from around the world to spend time together. The GROUP has had the pleasure of hosting O.I.ers from the United States, the Netherlands, Malaysia, Canada, Belgium, India, and many more.
The GROUP has made it a point to remain intimate, keeping the seats to 20-30 in attendance, to allow for a very engaged conversation amongst the attendees. This has given a focus to conversation and allows everyone to share their thoughts and also allows for time to support others in the meeting.
Success of the #OILife GROUP
Members of #OILife GROUP often share how these meetings have positively impacted their lives. For instance, JoAnn Formby gives a great testimonial in the video below.
JoAnn’s story underscores the transformative power of a support group that resonates with its members on a deeper level.
How to Get Support and Join an #OILife GROUP Meeting
Becoming a part of the #OILife GROUP is straightforward.
Interested individuals can check out our schedule and register for meetings via our website.
Embracing an inclusive approach, we have a ‘donate-what-you-wish’ policy for participation, starting at just $1. This ensures that everyone, regardless of financial circumstances, can join our supportive community.
The #OILife GROUP is more than a support group; it’s a vibrant community that embraces the complexities of living with Osteogenesis Imperfecta. It offers a unique platform for sharing, learning, and growing together. We invite you to check out our schedule, register for our next meeting, and experience firsthand the warmth and engagement of the #OILife family.
If you have any questions about the group, please contact Tony Jacobsen here.
